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In every aspect of our work to build Cambridge Children’s Hospital, the voices of children, young people and their families are at the forefront. Afterall they are the experts - and this is their hospital.

Listening to their stories is an important way for us to really understand what different healthcare journeys have been like, not just for the young patients but for their families, too. This collection of stories reminds us of the importance of exceptional care, where the ‘whole child’ and ‘whole family’ approach is so important. Their words paint a picture. Thank you to everyone who has shared their story with us.

Two women sitting with their young sons Patient story

Max and Parker's story

Katherine and Siobhan met in hospital when their boys were being treated for similar conditions. They became friends, finding support and comfort in their shared experiences, something that continued once Max and Parker were able to go home.

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Max and Parker's story

"If technology could be used to reduce impact on families, so they could have more care at home, if they prefer, that could be a really good thing.”

Katherine, Max's mum
A teenage girl sitting on the grass with her dog. The dog is grey, white and fluffy. Jasmine has long brown hair and is wearing pale blue jeans and a pale green t shirt. The sun is shining and it is summer Patient story

Jasmine's story

A knee injury after falling from a trampoline caused Jasmine to develop a complex psychological condition called Conversion Disorder

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Reuben walking on a gravel path that is surrounded by trees and grass.  A brick bridge is in the background Patient story

Reuben’s Story

Whole Genome Sequencing is a vital avenue of exploration for families of children with undiagnosed and complex conditions.

Reuben's story: A journey (opens in a new tab)
Nathan, Reuben's dad

It’s difficult to explain the feeling those undiagnosed families go through. To get an answer is such a relief.

Macie and Oliver sat on a bench by a tree, hugging and smiling. Patient story

Oliver’s Story

Cambridge Children's Hospital will support the child who is poorly, but also the whole family. That's because being in hospital affects everyone.

Oliver's story (opens in a new tab)
Macie, Oliver's sister

I would have liked to talk to someone I could be honest with, about home, school, feelings, rather than worrying my mum. Being in hospital and seeing and hearing what Oliver was going through was very scary.

Two young girls dress a mannequin in silky pink material. they are by a window in a child's bedroom which has pink walls and pink bedcovers Patient story

Phoebe’s Story

At the age of two, Phoebe caught a common cold. But as her symptoms worsened to the point where she couldn’t stand up, it became clear this was anything but common. The cold virus had triggered a rare inflammatory response in Phoebe’s body.

Phoebe's story (opens in a new tab)
A girl who is visually impaired, wearing a blue top smiling holding a cymbal cane Patient story

Sarah’s Story

Sarah, 19, has multiple complex disabilities and has been in and out of hospital since she was born. As a member of Cambridge Children's Young Adult Forum, Sarah has written about her experiences, including losing her sight in 2021.

Sarah's story (opens in a new tab)
Mum and son at graduation Patient story

Liam’s story

As a teenager Liam struggled with complex mental health challenges. He believes a children's hospital dedicated to treating mental and physical health will help reduce stigma for young people. (Story contains reference to suicidal thoughts and self harm).

Liam's story (opens in a new tab)

Going into a hospital that isn’t a mental health hospital, but one that just treats you as a person, might reduce stigma.

A teenage girl wearing glasses holding a mug and smiling Patient story

Alisha’s story

Born at Addenbrooke's Hospital at just 24 weeks, Alisha, now 18, has overcome multiple hurdles to get where she is today. Her passion for the Cambridge Children's Hospital project is her way of giving back to those who saved her life.

Alisha’s story (opens in a new tab)
Alex at home with his family Patient story

Alex’s story

When 9-year-old Alex bumped his head, his physical health declined rapidly. It took months for his condition to be linked to his mental health. He was treated at The Croft, a patient unit for children with mental health conditions and their families.

Alex’s story (opens in a new tab)
Anita with her daughter Jess on a train. They are both smiling. Patient story

Anita’s story

Anita Grant joined Cambridge Children's Network in memory of her daughter Jess, who died of a rare cancer when she was 15. Jess felt passionately that a dedicated children's hospital for the east of England was desperately needed.

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Anita, Jess's mum

We missed being comfortable and having structure to our days. There was so much waiting around. Just waiting for things to happen.

Max smiling, sat at top of a slide with holding a toy. Patient story

Max’s story

Max was born with paralysed vocal cords which restricted his breathing and required a tracheostomy. At 14 months old tracheostomy was removed. A small part of his rib cage used in reconstructive surgery, allowed him to breathe, swallow and communicate.

Max’s story (opens in a new tab)
Summer, wearing denim outfit, standing by a large tree, with a hand across her face making a sign. Patient story

Summer’s story

Drawing on her experience as an inpatient at The Phoenix, a specialist eating disorders unit near Cambridge, 24-year-old Summer has become a passionate advocate for Cambridge Children’s vision of integrated care. (Contains references to eating disorders)

Summer’s story (opens in a new tab)