A collection of stories from children, young people, parents and carers about their healthcare experiences.
Charlee’s story
Born with Moebius syndrome, three-year old Charlee Baldwin has facial paralysis and weak upper body muscles which limit her movement. Her parents were told she would never move and she needed to be fed through a tube in her tummy. Now, thanks to a real team effort, not only has she learnt how to roll, sit and hold her head up she is also learning to eat puréed food and has started school.
Zachary's story
Imagine a world where you are sick up to 50 times a day. For 14-year-old Zachery Sayers from Hertfordshire, this had become a daily reality. Zach had been vomiting on and off since he was very young. However, while he had a history of gut reflux, doctors could find no physical cause for the vomiting.
Holly's story
A ten-year-old girl who suffered a stroke is the youngest person to receive life-saving surgery using a newly installed state-of-the-art imaging system in the Interventional Radiology suite at Addenbrooke’s Hospital.
Millie-Mae's story
Whole genome sequencing leads to better care for Millie-Mae
Max's story
Max was born with paralysed vocal cords which restricted his breathing and required a tracheostomy within his first few weeks of life. When it was time to remove the tracheostomy, a small part of 18-month old Max Lee’s rib cage was the key to reconstructive surgery which allowed him to breathe, swallow and communicate on his own.
Alex's story
We’ll treat the child and the adult they’ll become. Precise genomic research will help young adults like Alex stay healthy now — and make sure they’re healthier long into their future.
Zofeya's story
The importance of treating children as individuals with unique and complex care needs has been highlighted by the mother of a girl recovering from an aggressive brain tumour.
Max's story
Every child recovers differently. By understanding their individual needs we can help young people like Max feel better quicker.
Alex's story
When 9-year-old Alex bumped his head, his physical health declined rapidly. It took months for his condition to be linked to his mental health. Thank you Alex and family for sharing your stories.